Age / date of birth:
15 years old, born on 4th April 1998
I love my pets – a parrot and a dog. I look after them myself and they are my source of joy when I am not feeling well. I also love horseback riding.
Marzena and Slawek.
Brother – Przemek, 16 years old. My brother is a football player. Sometimes he wins, sometimes he loses but he’s a nice brother. We argue from time to time but we miss each other when I am in hospital.
Natalia is 15 years old. She’s a joyful and happy little girl. Natalia was diagnosed with Cystic fibrosis when she was just 2 months old. Our fight with this disease is like a never-ending story. Cystic fibrosis is a chronic condition and will always affect Natalia’s life.
When she was younger Natalia wasn’t able to cough up the thickened mucus and she spent a lot of time in hospital. Sometimes we’d be on our way back home after a 10-day treatment when we had to turn around and return to the hospital as she wasn’t able to breathe and was losing consciousness. The treatment of CF includes breathing therapy: Natalia lies in a head down position while we pat her back and chest for approximately 20 minutes.
Sport is important in Natalia’s treatment, and as she goes to school she is very active. Even though the inhalations and other treatments take a lot of Natalia’s time, she is very keen on school and she takes part in school activities. From time to time Natalia needs to go to hospital for an intravenous antibiotic treatment. She says that hospital is her second home, doctors and nurses are her relatives and other CF children patients are her brothers and sisters.
The only thing we can do is to try and make sure that the disease doesn’t do too much damage to our daughter’s body. We cried a lot but have managed to stay positive. We love Natalia and we will fight for her. Her words, that we hear every day, are our treasure: ‘Mum, Dad, I love you. Thank you for everything you’re doing for me.
When the sun rises a new day begins. Every day is different, which makes life beautiful. To us, Cystic fibrosis sufferers, one thing never changes: inhalations – drains – physiotherapy….That’s why I am very happy to read the words coming from your hearts, whether it’s on this website or in your letters, and I thank you for them.